Fighting Multiple Sclerosis

Sunday, July 11, 2010

Why do people go against one another who are fighting the same thing

Hello again,

I recently was at!/bydls and this particular article had several negative post. I was in one of those moods were I was not in a negative mood but wanted to be supportive. I felt my heart breaking as I read some of these post so I wanted to reach out a hand or word I guess you would say of my experiences and how they had helped me. I guess I was thinking if I could help one person it would be a good thing.

A few post later I was attacked for some of the things I said. One women was so mad at me because she said "telling someone to get a counselor or go to a pain clinic doesn't help and some of us don't have these luxuries". My comment prier to her saying this was that "I recommend finding a good counselor and pain clinic" I had only recommended it I would never tell someone to get or need to or have to get a counselor. That to me is a decision you have to make on your own and I believe you have to be ready for help before you can ask for it. Her comment about some of us don't have the luxuries really bothered me b/c she just assumed I did. In fact it is just the opposite if it wasn't for state aid I wouldn't be going to any doctors and would still be skipping meals and what ever else so that I could afford my medications.

If you would like to read all of it feel free to I have posted the exact web sight. If you disagree with some of the things I said or feel I was in the wrong please tell me. I am not understanding why me taking the supportive road and not the venting negative road is wrong. Some of the comments really bothered me b/c they were saying things like "God is just stupidity" and I just can't comprehend that. I understand everybody is not like me and I truly believe that you should not push your beliefs on someone else that is a decision they have to make on there own. I am a strong believer that everybody has there own relationship with there own God. I am also a believer that having some form of faith and in my life a prayer circle helps me mentally to gain the strength to get through everyday one day at a time.

I truly want to know peoples thoughts on this. I just don't understand why people with an illness would turn against someone else who also battles the same illnesses. I even had one women say "I do not go through what they do" That really hurt me along with many other emotions like anger. That is when I responded with a venting but yet apologetic post. I couldn't restrain myself. Then I was told "You are a very angry person" I just couldn't win for loosing with my fellow autoimmune disorder family members ( I consider anybody with an autoimmune disorder in a way family ). I don't know why maybe it is my caring and giving personality. My counselor said that I take on a lot of other peoples problems as my own and I want to be almost like a counselor for them. She has explained to me that I can't do that anymore and that I have to take care of myself and not take on other peoples problems as my own.

I understand that I can not take on other peoples problems as my own and I have stopped doing that. I have also learned that peoples insecurities, lack of education, meanness and what ever else they have issues with is not about me and that it is about them. It is about there own insecurities and that I can't take on there problems as being about me. I have realized that it is not about me it is about themselves.

I want everybody to feel free to post your honest opinion and not worry about judgment from me and I hope that no one else will be judgmental but just give there opinion and if you want advise. I love to learn from my mistakes and will be the first to admit when I have done wrong.

Well I guess that is all for now I just needed to get some of this off of my chest. I read it all to my mom and she said she needs to get on there b/c she could really stir up some shart. LMBO that's my mom for ya. God I love my mother and she is truly my best friend and I find the older I get the more I am like her. LOL I wish everybody could have the type of relationship with there parents the way that I have with mine.

Well much love and hugs to all

Thursday, July 8, 2010

Multiple Sclerosis and our battles Autoimmune Disorders: Introducing Myself

Multiple Sclerosis and our battles Autoimmune Disorders: Introducing Myself: "Hello my name is Nickey and I have Primary Progressive Multiple Sclerosis along with many other illnesses. I do NOT let them define me. I h..."

Introducing Myself

Hello my name is Nickey and I have Primary Progressive Multiple Sclerosis along with many other illnesses. I do NOT let them define me. I have a beautiful little 3yr old boy who is my blessing from my dad and God. My spouse and I were told we would never have children. My father passed away suddenly active duty when I was 7 and he used to joke to my mother, wouldn't it be neat to have a little red headed freckle faced boy. Well 14 grand daughters later we found out I was pregnant. There are no boys and there is no red hair jeans on either side of our families. One day I woke up feeling a little different and found out that we were pregnant. Then on April 25th 2007 I gave birth to a beautiful strong healthy little red headed boy. He is the first Grandson. So that is why I consider him my gift from my daddy and made possible by our wonderful God.

My son is my pride and joy so we spend many days just enjoying each others company playing games or maybe just curling up and watching one of his movies as he grabs my hand to put on his head to rub my fingers through his hair or on his tummy to hold him close. Then out of the blue he will turn to me and look me deep in the eyes and give me the biggest hug and kiss with his big puckered up lips and then say "I Love You". I cherish every moment I have with him b/c I know one day I wont be able to do some of the things he needs or wants me to do. For example go to games or maybe when he is 5 or 6 take him out swimming or out to play in the dirt.

I want this to be a place were everybody who is dealing with any type of illness to be able to come and just talk. I encourage care givers to join in also. I have seen first hand how hard a care givers job is. My Rock is my spouse and my caregiver. He is what keeps this family going.

I have never done a blog before but I will say that I think I will enjoy this. There will be times of tears and times of laughter times of screaming and times of thanks for so many blessings.

I will leave with that. Much love, hugs and blessings to all.